INTERNAF is an international email based network. This network allows members access to medical and research information, much needed support, question and answer exchanges and daily living tips, pertaining to ataxia from all over the world. Those diagnosed, their family, friends or anyone with an interest in any of the numerous ataxias, are encouraged to join us. Internaf is run by volunteers who all have some form of ataxia themselves. We all aim to make this a friendly and informative place. There are currently subscribers from more than 40 countries worldwide.
Subscriptions to INTERNAF are free and the list is unmoderated (new members are moderated at first to protect the list from spammers).
To subscribe to INTERNAF, send an email to email@example.com or to have full access to all of the yahoogroup's options on the website subscribe via http://health.groups.yahoo.com/group/internaf/join
****ONLY SUBSCRIBED USERS CAN SEND E-MAIL TO THE LIST****
We also have a website containing alot of info at http://internaf.org/
Please send a message to the list (if you wish) introducing yourself and indicating whether you are a patient, friend, relative or caregiver and the type of Ataxia diagnosed.
HOW TO SEND A MESSAGE TO THE LIST:
The introductory message as well as all other "public" messages should be sent to the following e-mail address: firstname.lastname@example.org
Your message will be automatically sent to all subscribers. Conversely, you will receive all messages sent to the above address.
REPLYING PUBLICLY TO THE LIST:
When deciding whether to reply publicly or privately, you should ask yourself if your response may benefit any other members. If the answer is yes, then you should reply publicly
To do this, use the "REPLY ALL" feature of your mail software. Before sending however, please check in the "header" of your mail, that the message is addressed to: email@example.com
REPLYING PRIVATELY TO INDIVIDUAL LIST MEMBERS:
If you want to reply privately to the sender of a message, use the "REPLY" feature of your mail software. Before sending however, please check in the "header" of your mail, that the message is addressed to the sender and not to the list.
WHICH LIST TO JOIN
Because of the success of the Internaf list and the volume of mail generated, some members may prefer to switch to the digest version - A single e-mail containing all recent posts. The frequency of the digest version is one per day.
You may choose to subscribe to either list internaf and switch to the digest version, if you are unsure which list to join, read this first.
INTERNAF DIGEST VERSION
The INTERNAF DIGEST version option is for those who don't wish to receive 20 or more separate emails per day from the regular INTERNAF subscription option, but instead receive one large email every day. The DIGEST is much easier to manage as it is simple to scroll through and skim for any items of interest.
To switch to the DIGEST version, first subscribe to internaf then send an email to firstname.lastname@example.org and to switch back send an email to email@example.com.
This is a one-way list intended to provide subscribers with research and medical updates. Once subscribed, you will receive the following info:
- ataxia research updates from INTERNAF-PRO when available
- current relevant medical journal articles concerned with ataxia research
- other relevant neurological research articles
- links to useful websites relating to ataxia or disabilities
- announcements of any new research studies or clinical trials when available
- notification of upcoming national or international ataxia meetings worldwide
- reports and summaries from recent ataxia meetings when available
- occasional articles composed by INTERNAF members on particular subjects eg. exercise, vitamins etc.
If you subscribe to INTERNAF, then there is no need to also subscribe to INTERNAF-NEWS since everything that gets posted on the NEWS list is also posted on the main list. In addition, should there be a particularly important breakthrough we will not wait until the next edition of the newsletter to inform you but you will receive the information at the same time as those subscribed to INTERNAF.
Subscriptions to INTERNAF-NEWS are free.
To subscribe to INTERNAF-NEWS, send an email to firstname.lastname@example.org
A mailing list for invited Professionals only. There are currently over 125 members from 15 countries. Members include neurologists, ataxia researchers and others with an interest in SCA's, FA, A-T, EA, FSP, and MSA/SDS as well as other neurological disorders resulting in ataxia.
From time to time, the moderators will forward to this list a question from members of the main list, which needs a professionals input. It's also a place for them to share info or ask questions.
Subscriptions to INTERNAF-PRO are free and by invitation only. If you have a professional interest in ataxia and would like to be subscribed to INTERNAF-PRO please contact any of the INTERNAF-PRO owners at <email@example.com>.
TO ACCESS VIA THE WEB (ALL POSTS ARE ARCHIVED AND SEARCHABLE)
Go to the Group Home Page: http://groups.yahoo.com/group/internaf
The first time on yahoogroups you'll have to subscribe (to yahoogroups, not internaf), then just click on messages and all the posts are there. When you think or know a certain subject has been talked about before on the list, you can search our messages archives. Just type in a word that's in the subject or in the message body, the authors name or email, in the type box then click on Search Archive.
If you are going to be away from your computer for any length of time, for vacations etc. You are
advised to changes your delivery setting to no message delivery before you leave, this way you're still subscribed and you can read messages via the web page, here's how:
Click here and send: firstname.lastname@example.org
Click here and send: email@example.com
Then, on your return just restore your settings, here's how:
Click here and send: firstname.lastname@example.org
Click here and send: email@example.com
changes your delivery setting to Individual Emails for the group.
Click here and send: firstname.lastname@example.org
Click here and send: email@example.com
changes your delivery setting to Daily Digest for the group.
UNSUBSCRIBING FROM A LIST:
To unsubscribe from the list at any time:
Click here and send: firstname.lastname@example.org
Click here and send: email@example.com
FOR QUESTIONS OR HELP:
Click here and send: firstname.lastname@example.org
dispatches an email that contains the basic information of the group.
Thanks for subscribing! We look forward to hearing from you!