Internaf Newsletter May 2000 Issue Page 2

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-- By Joe Villa

There is an old saying that “The road to hell is paved with good intentions”.  This column is not meant to be negative, but if I hear, “Are you ok”, one more time, I am going to scream.  Well anyway, now that I said that let me get on with it and try to explain myself.

Webster defines intention as “a concept considered as the product of attention directed to an object of knowledge.” and defines good as “deserving of respect or praise”.  Therefore when we consider someone having good intentions, we must mean that if they are worthy of our praise or respect there must be a prior knowledge of the subject they are focusing their attention towards. Right?  Though Webster defines the words that way, usually just the opposite is the case when someone says, “at least their intentions were good.”  This means that the person tried to help even though they had no real “prior knowledge of the subject”.  For instance, people who do not have Ataxia can not fully understand our everyday struggles.  For their credit they do try, but when something happens the standard, “Are you ok?” or “Can I help you?” is heard. YUK!!!

As is plain my attitude right now is one of frustration.  You see I am learning about humility.  It is a humbling experience when even the easiest of tasks are difficult.  There is not a day that goes by that I don’t choke on a glass of juice, or start a conversation and not be able to finish it.  To make matters worse, the only thing keeping my walking somewhat stable has been my physical therapy.  Which has also helped me with the knee pain and muscle spasms, but now Medicare says, “No more PT, because we don’t pay for maintenance, just improvement.”  Well enough about me personally, let’s get back to intentions.

Through the years, I have found that the people on the InterNaf have true, “good intentions.”  As one person put it in her response to a welcome post,
“Welcome ------ to INTERNAF. U will find allot of support here. Your input will be
valuable and I along as everyone on this list will enjoy getting to know u better.
On the InterNaf forum, we have had several people join who really felt they had no where to turn for information.  The doctors were uninformed or as one person put it,
“I don't think I would know much of anything without your input- my neurologist doesn't
seem to care what I have.
There are support groups out there, but not everywhere yet.  So sometimes we truly feel alone as one person put it,
“I belong to the southern part of India. When enquired , I came
to know that there are no person from this part being diagnosed as Freidrich's
Ataxia.. So it is a feeling of isolation and depression that I am going
through. I need able support from you people.”
When you tap into the true intentions (as Webster defined) results will be profoundly better and responses such as this Member put it,
 “Thanks so much for your encouragement and information.”
Another had this to say,
“I want to thank whoever responded to my post. I feel so relieved to know I
am not alone. Thanks again for putting my mind at ease!”
It is here on the InterNaf and the support groups that we draw our greatest strength from.  We are not alone, there are so many others who know what we face each day.  Some are physically worse off and some better then ourselves.  However, I think I can say with a surety the intentions of everyone here are good.

In closing let me leave you with these words from a Mother of an Ataxic child,
“Thank you all for your supportive and encouraging words. I don't feel so
lost and alone with this disease. I feel that I can get some insights on
her condition from all of you. I hear your fears, concerns and some very
interesting problems that her doctors never told me about. “

Just a thought and God Bless!

The Disabled Writer's Network
- By Rawnie Dunn
 

My computer has been going in and out [mostly out] for a week and I don't know how much time I have to get this out so without further ado here's a collection of very large, somewhat interactive writing sites filled with great primarily free resources:

Authorlink
"The award-winning news, information, and marketing service for editors, literary agents, writers and readers..."
http://www.authorlink.com/index.html

correspondent.com
"...a service of EPNworld, is the fastest growing network of top independent journalists.  EPNworld connects members of correspondent.com to commissioning news editors globally." -free to qualified professionals
http://www.correspondent.com/

F I C T I O N E E R
general resources; also focuses on specific genres, such as fantasy, romance, mystery and suspense
http://www.fictioneer.com/

Institute for Alternative Journalism
"IAJ is a nonprofit organization dedicated to strengthening and supporting independent and alternative journalism..."
http://www.alternet.org/an/
   Check out the hilarious NewsQuirks  http://www.alternet.org/

Inkspot
a favourite with writers
http://www.inkspot.com/

Mightywords
Mainstream writing site with good resources; $15,000 writing contest http://www1.mightywords.com/writerscorner/home.asp

Moondance
"...to represent the diversity and uniqueness of all creative women."
http://www.moondance.org/

Screenwriters & Playwrights Home Page
http://www.teleport.com/~cdeemer/scrwriter.html

Sunoasis Jobs for Writers, Editors, and Copywriters
"dedicated to bringing the job to the writer, the writer to the job."
http://www.sunoasis.com/index.html

THE TV WRITER HOME PAGE
kinda funky
http://www.tvwriter.com/

Writing Corner
240 page site; clear and friendly
http://writingcorner.com/
 

There are hundreds of local online Writers' Groups throughout the world.  Find one for your locale at Ask Jeeves  http://www.ask.com/  .  Here's a sample:

Writers Cramp West Seattle
http://www.forwriters.com/writerscramp.html

Stockport and District Writers' Circle:  UK
http://www.swcircle.freeserve.co.uk/

San Francisco Bay Area Writers' Groups
http://www.enclave.org/write/index.html

The Federation of British Columbia Writers
http://www.swifty.com/bcwa/

The European Federation of Freelance Writers
http://www.eurofed.org/main.html
 

Following are some terrific inline newsletters:

Oasis 2000
Subscribe:  oasis-l-subscribe@topica.com

About.com Guide to Freelance Writers
To add  a new email address  or remove your  email address from this  newsletter, visit
  http://freelancewrite.about.com/gi/pages/mmail.htm    and    click    the
  subscribe  or  unsubscribe  button.

inklings
send the following commands (exactly as shown) back to "majordomo@samurai.com":
          auth dc49ed5e subscribe inklings YOUR EMAIL ADDRESS

QWERTY - FicTech/Fictioneer Newsletter.
http://www.fictioneer.com/
 

Whew!  This is like waiting for a guillotine to drop.   ...think 'A Tale of Two Computers' would sell?

Internaf Newsletter May 2000 Issue Page 2

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