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Europe in general

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The international name for this disease is Hereditary Spastic Paraplegia. It is part of the big family of spinocerebellar degenerative hereditary diseases in which the pathologies are somewhat intermediate and hard to differentiate especially in what is called the "complicated" form. However, the "pure" form of S-L is increasingly better known. Many studies are currently undertaken to better understand the main one, SPG4.

France

The disease of Strümpell-Lorrain

Strümpell-Lorrain Association
https://www.asl-hsp-france.org

This spinal, and sometimes cerebellar, degeneration is clinically a part of cerebellar ataxias. That is why in France, we created a federation with the goal to unite all the European organizations (SCD EURO). Concomitantly, a medical network on spinocerebellar degeneration is being created.

SCD EURO
http://perso.wanadoo.fr/asl.spastic/scdeuro.fr

Philippe Grammont
7 D rue des Granges
F &endash; 25000 Besançon

For A-T

logto afafFor Friedreich's Ataxia and another one

CSC : French association for cerebellar diseases.

Belgium
logo ABAF http://www.ataxie.be/

Germany

Deutsche Heredo-Ataxie-Gesellschaft. e.V.
Haußmannstraße 6
70188 Stuttgart
Telefon: +49(0)711 - 21 55 114
Telefax: +49(0)711 - 21 55 119
e-mail zur DHAG

Friedreich Ataxie FörderVerein e.V.
Gottfried-Keller-Str. 23
81245 München
Telefon: +49(0)151 - 269 37 265
e-mail zur FA-Förderverein

logo-fataxie.net

ataxie-online germany

Italia
logo aisa http://www.atassia.it/

http://www.atassiadifriedreich.it/

comitato rudi italia

gofar

Portugal

apahe portugal

Scandinavia

http://dk.groups.yahoo.com/group/Ataxi/

Spain

Federación de Ataxias de España (FEDAES).

Sweden

Sweden Ataxia logo

Switzerland

logo achafAssociation suisse(CH) de l'Ataxie de Friedreich